When you are in pain every day, you learn to brush it off or hide it so others don't realize you're hurting. I hide it very well and even manage to fool myself into thinking it's not that bad. I didn't realize how much I fooled myself until I started to focusing on the symptoms.
On Monday the 7th, I started a log . It's just an excel spreadsheet where I list basic activities, pain level, where it hurts, etc.
I only have four days worth of stuff and already it's made me think. When you have to rate your pain level, it makes you ask yourself, why didn't I say anything sooner? or Why didn't I get help? Because I've learned to hide the pain, the fatigue, and all the other crap on a day to day basis. With work, I always had something to distract me from how crappy I felt. Since I'm not working, well... no distractions and a lot of thinking. Self realization.
The thought of finding another job is scary. it's terrifying to me. I haven't had a job interview in nearly 18 years. I'm sure that it's normal to be scared and intimidated over the thought of looking for another job, getting those interviews.
But I realized something else. What is making me panic and stress is the thought of having to walk in a huge office. How many steps to the bathroom? What's the shortest route to the bathroom? Would I be allowed to take frequent breaks? Because I can't stay seated behind a desk for more than hour or my legs hurt and get stiff. If I can't take frequent breaks, would my future boss think it's okay to wander around my cube or just to stand for a few minutes. Speaking of standing, I can't stand longer than a half hour or my poor feet hurt worse.
so yea, I have those thoughts going on. The symptom log I started has made me realize that I shouldn't be hiding what Rheumatoid Arthritis is doing to me. I haven't seen a rheumatologist in years and that's biting me in the ass now. Why haven't I seen a RA doc? Because I have had horrible luck with them and the medications they put you on are insane. I know I have to find an RA Doc once my health insurance is figured out but I just hope he's going to listen to me.
I won't go into my reason about why I don't like the medications or my history with RA docs. You can see my post from last year by clicking here. So now, I need to find a rheumatologist who will listen to me and help me and that might take a while.
Wish me luck!
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